"It is no use walking anywhere to preach unless our walking is our preaching."
St. Francis of Assisi

 

Gregory and Renata Crawford have gone into the desert and returned. Welcome back!

The Drs. Crawford set their bicycles on a 2,200 mile path from the University of Notre Dame's (Dome) to the Ara Parseghian Medical Research Foundation in Tucson, AZ (Desert) to honor children and families fighting to overcome Niemann-Pick Type C (NPC) disease. It was their way of expressing the dedication of the Notre Dame community to finding a cure for NPC and realizing the dream of the NPC families, including the much loved Parseghian clan. Along the way, the couple met with many Notre Dame alumni and NPC families who shared the Crawford's commitment to fast-tracking life-saving research.

The journey by the Dean of Science and his spouse was inspired by the Parseghian Medical Research Foundation's expression of faith in the UND community by establishing the Michael, Marcia and Christa Parseqhian Endowment for Excellence. The endowment established in the College of Science will be used to support multi-disciplinary and multi-institutional NPC research and the annual NPC conference. Ongoing NPC research programs at UND through the Drug Discovery Core and the Center for Rare and Neglected Diseases will be enhanced by the expansion the University's collaborative network, which was enabled by this endowment.

The Parseghian Foundation is named for Notre Dame's former head football coach, whose three grandchildren developed NPC disease. Their parents, Mike and Cindy Parseghian are UND alumni whose extraordinary efforts, together with other NPC families, have brought the day closer when other children will be cured and their families spared the devastation of this illness.

For highlights of the ride by Dean Crawford and Dr. Renata Crawford, as well as more information about the University's partnership with the Parseghian Foundation, please visit the Notre Dame Science Niemann-Pick Type C Research website.

 

 

“If children have the ability to ignore all odds and percentages, then maybe we can all learn from them. When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or Fight Like Hell.”

Lance Armstrong

 

 

 

 

Of Interest...